June 23, 2021

June 2021 PKD e-News


June 2021


Welcome to the PKD Foundation of Canada's June e-News! We have provided information important to helping you take action in your journey with PKD.


In partnership with BC Renal, we've provided you with three new educational resources to help you on your PKD journey. Check them out below!

Pain and Polycystic Kidney Disease | Screening and Testing for ADPKD | Pregnancy and Family Planning with ADPKD

A recent article from the Clinical Journal of the American Society of Nephrology explores the association between overweight and obesity with ADPKD progression and efficacy of tolvaptan. Read the full article here.

"Immune responses to COVID-19 mRNA vaccination appear strong in patients on hemodialysis, but less certain in kidney transplant recipients, in whom these responses may vary by immunosuppressive regimen, according to a new study." Read the full article
 from Renal and Urology News here.

"Though the majority of our work lives look different during COVID-19, one thing has remained constant: the back and neck pain we get from sitting all day." Visit UHN's website for simple stretches and daily movements to help ease your pain!

Gavin Sexton (11 years old) finally received a new kidney after three years on dialysis. His teacher, Ann Chiumino, and Gavin will have a bond for life. Read the full article here.

We are heartbroken by the discovery of the remains of 215 Indigenous children at the former Kamloops Indian Residential School. Our hearts are with all of the survivors, intergenerational survivors and families impacted by Canada’s residential schools. Read our full statement here.

The latest Living Transplant episode, "A Heart Away From Home," features Heather Lannon, Outreach Coordinator for the Centre for Living Organ Donation, PhD candidate and caregiver. Heather offers an in-depth look at the transplant experience as a caregiver. For more information visit UHN's Living Transplant Podcast.

Bike to the Moon is an annual PKD Foundation of Canada global bikeathon. Collectively, we aim to bike the distance to the moon (384,400 km) and raise funds for critical Canadian PKD research across Canada.

Help us reach our goal of $40,000 by registering or donating today! Click here for more information.

Every dollar raised online for the PKD Foundation of Canada through Canada Helps in the month of June counts as an entry for the PKDFOC to win a $20,000 prize! For more information, visit

Given the current climate related to COVID-19, the PKD Foundation of Canada has made the decision to keep our signature fundraising event, the #WalkToENDPKD, a VIRTUAL celebration this year - taking place on SUNDAY, SEPTEMBER 26th! Registration for the 2021 Virtual Walk to END PKD opens July 15th!

We hope you will help us reach the ultimate finish line - a cure for PKD!

With the tips provided here, you can plan your own successful fundraiser to make your support go further in the fight to #endPKD.

Polycystic kidney disease (PKD) is one of the world’s most common, life-threatening genetic diseases. Your stories can help people paint a more powerful picture of PKD and the lives it affects.

Help give a voice to a widely unknown disease by sharing your story here.

You can read some of our Voices of PKD here!