May 25, 2021

May 2021 PKD e-News


May 2021


Welcome to the PKD Foundation of Canada's May e-News! We have provided information important to helping you take action in your journey with PKD.


The 58th ERA-EDTA Congress will be held in Berlin virtually from June 5th-8th 2021. PKD patients can attend the Congress sessions free of charge. To register, visit the ERA-EDTA Congress Registration page and select the 'Young professionals (28 years old or younger) + Students + Patients' category.

Dr. York Pei, MD, FRCPC, FACP, FASN, Professor, Division of Nephrology, Department of Medicine at the University of Toronto, and Director at the Centre for Innovative Management of PKD, University Health Network, will be hosting three educational sessions on PKD over June 5, June 19 and July 10. Topics will include a clinical case discussion with PKD experts, managing the side-effects of vasopressin V2 receptor blockade in ADPKD, and healthy diet and intermittent fasting with ADPKD.

For a full summary of the three events and information on how to register, please click here.

The PKD Foundation of Canada recently partnered with BC Renal and the Kidney Foundation of Canada BC & Yukon Branch to update diet changes for adults with polycystic kidney disease. You can check out this information here:

Dr. Nadia Zalunardo (Nephrologist) and a Dietitian who specializes in kidney disease will lead the presentation, followed by a BC Kidney Care Patient who will offer a patient perspective. Learn more and register here!

"Today, knowing his life is continuing through others really is helping us through our grief," said the daughter of organ donor, Cecil Lockhart. Read the full CBC article here.


ICYMI: Jeff Robertson, Executive Director of the PKD Foundation of Canada, joins Courtney and Brittany to talk all things polycystic kidney disease (PKD).

Living Transplant episodes are available on Spotify, Apple Podcasts and Google Podcasts. For more information, and to download episode transcripts, visit UHN's Living Transplant Podcast.

"Today, there are over 140 New Brunswickers waiting for transplants," said Opposition Liberal health critic Jean-Claude D'Amours, who introduced the proposed legislation, also known as Avery's Law, in honour of Avery Astle, 16, who died after a crash in Miramichi in May 2019. Read the full article here!


Bike to the Moon is an annual PKD Foundation of Canada global bikeathon. Collectively, we aim to bike the distance to the moon (384,400 km) and raise funds for critical Canadian PKD research across Canada.

Bike to the Moon with us this June! For more information and to register, visit!

The Great Canadian Giving Challenge is a month-long campaign in June when every dollar raised online for the PKD Foundation of Canada through Canada Helps counts as an entry for the PKDFOC to win a $20,000 prize! Stay tuned for more information through our FacebookTwitter, and Instagram social media channels!

Do you have an old vehicle taking up space on your property? Visit to find out more about our partnership with Donate-A-Car! ⁣

With the tips provided here, you can plan your own successful fundraiser to make your support go further in the fight to #endPKD.

Polycystic kidney disease (PKD) is one of the world’s most common, life-threatening genetic diseases. Your stories can help people paint a more powerful picture of PKD and the lives it affects.

Help give a voice to a widely unknown disease by sharing your story here.

You can read some of our Voices of PKD here!