October 30, 2020

October 2020 PKD e-News


October 2020


Welcome to the PKD Foundation of Canada's October e-News! We have provided information important to helping you take action in your journey with PKD.


Watch The Webinar Recording Now: Managing Depression and Anxiety with Polycystic Kidney Disease

Thank you to those who joined us on August 27th for our webinar, 'Managing Depression and Anxiety with Polycystic Kidney Disease.'

COVID-19 is a serious health concern and the impact on our lives continues to evolve on a daily basis. In these unprecedented times, we all need to be mindful of the effects these extra stressors have on our mental health. 

The PKD Foundation of Canada was proud to present this complimentary webinar, 'Managing Depression and Anxiety with Polycystic Kidney Disease.' This webinar gave our community the opportunity to ask questions to Carla Williams, a Kidney Care Clinic and Transplant social worker.

This presentation focused on managing depression and anxiety while also living with a chronic health condition, such as polycystic kidney disease. Additional talking points included:

  • Living with a chronic health condition and its affect on mental health
  • How social workers can support those living with chronic illness who are experiencing depression and anxiety
  • Mental health assessment and support resources that are available online 
  • Impacts of COVID-19 on mental health and wellness
Speaker: Carla Williams, BSW, RSW

In case you missed it, the recording is available online here!

To watch all of our past educational webinar recordings, click here!

PKD Health Notes: Renal-Friendly Treats

With Halloween around the corner, make sure to check out this article that lists renal-friendly candies, as well as a list of treats that are recommended to be avoided by those with kidney disease or who are on dialysis.

Read the article here!

We hope you have a safe and spooky Halloween!

Phosphorus and PKD: What You Need to Know

"Before your PKD diagnosis, you probably didn’t give much thought to phosphorus and kidney disease. While it plays many important roles in keeping you healthy—including building teeth and bones, growing and repairing your body’s cells and tissues, and converting the foods you eat into energy—this mineral doesn’t get much attention. It’s easy to get all the phosphorus you need and more without even trying. But for people with PKD, consuming too much of it can be a major concern."

Read the full article here!


New Online Program For Those Who Need a Kidney Transplant: Having Your Donor Find YOU!

Harvey Mysel, a 2-time living kidney transplant recipient and founder of the not-for-profit Living Kidney Donors Network (LKDN), has been helping kidney patients for over a decade by giving workshops at transplant centers and dialysis clinics. This experience has provided him with a unique perspective and a deep understanding of how recipients find donors. Having Your Donor Find YOU! is a comprehensive video series with graphics that educates patients about transplant and gives them the tools to mount a successful living donor campaign. 

To learn more and view the 'Having a Donor Find You' video series, click here!

Stevie Wonder Says He’s Feeling 30 Years Younger After Kidney Transplant

Stevie Wonder says he’s feeling 30 years younger after undergoing a kidney transplant last year.

“I was blessed with a new kidney and that happened on December 6, 2019 … I feel great. My voice feels great,” he said during a virtual press conference on Tuesday. “I told my daughter Aisha, ‘I’m going to be like five years younger than you now. I’m going from being 70 to being 40.’ I feel like I’m about 40 right now. I’m feeling great.”

Read the full article here!

A 3-Year-Old's Lifelong Battle Inspires a Van Buren County Stranger To Donate Her Kidney

Two strangers in Van Buren County, Michigan, are now bonded for life, thanks to a mom of two who donated her kidney to 3-year-old Rilynn Rose Payne.

Payne was born with autosomal recessive polycystic kidney disease (ARPKD), a rare disease that forced doctors to remove both her kidneys when she was just four days old.

Initially, Payne was supposed to get a new kidney within her first year of life. However, she hit multiple obstacles including liver cancer and chemotherapy that put the plan on hold.

Read or watch this inspiring story about the gift of life given by a stranger here!


Join Us In Supporting The Canada Cares Campaign!

Canada Cares was started with the idea to ensure that Canada’s charities could continue to support their community.

We are calling for the federal government to implement a 1:1 donation matching program to sustain the charitable sector across the country. A matching fund has the capacity to double the impact of donations made by ordinary Canadians, empowering the charitable sector to survive COVID-19 and thrive beyond the pandemic.

Learn more and raise your voice with us here!

How to Access Free Mental Health and Emotional Support During the COVID-19 Crisis

"As the coronavirus pandemic changes everyday life in dramatic ways, it's also shaking the foundation of our psychological and emotional well-being.

If you feel alone, overwhelmed or in crisis, there's always someone you can call (or text) for help. Here are just some of the free, confidential resources available in Canada, depending on your needs."

For more resources and to read the full CBC article, click here!

We Want To Hear From You!

Your opinion matters to us and we'd like to know more about your journey with PKD to help serve you better! If you are living with PKD, or a care-giver, friend or family member of someone who has PKD, this survey is for you!

You can complete our survey in English here!

You can complete our survey in French here!

Help People SEE ADPKD: Share Your Story Today!

Polycystic kidney disease (PKD) is one of the world’s most common, life-threatening genetic diseases. Your stories can help people paint a more powerful picture of PKD and the lives it affects.

Help give a voice to a widely unknown disease by sharing your story here.

You can read some of our Voices of PKD here!