June 10, 2022

June PKD e-News 2022

Welcome to the PKD Foundation of Canada's June e-News! We have provided information important to helping you take action in your journey with PKD.

To view the e-News in French click here!


Over the last 2 years, Jessianna and her dietitians have worked with over 100 people with PKD on ketogenic diets. They've had some exciting results and learned some incredible things. In order to further validate their observations, their kidney-safe ketogenic approach will be put to the test in an upcoming clinical trial in Toronto, led by Dr. York Pei. Jessianna will share a few details about this trial, why it is an exciting step forward, and how you can be involved.

Register Today!


Bike to the Moon is an annual PKD Foundation of Canada global bikeathon. Collectively, we aim to bike the distance to the moon (384,400 km) and raise funds for critical Canadian PKD research across Canada. 
To register and learn more, visit!

PKD Foundation of Canada has a number of upcoming virtual social hours in July and August! We'd like to use this time to introduce new faces and catch up with seasoned members. Chapter Coordinators from the corresponding provinces will be accompanied by PKDFOC Executive Director, Jeff Robertson. We would love to see you there!

To learn more and to register for a social hour near you, visit!

DIY fundraisers are a great way to make your support go farther in the fight to #endPKD. The #DIY2ENDPKD campaign encourages PKDFOC supporters to put a personized spin on fundraising to support programs of critical PKD research, education and advocacy. PKD Foundation of Canada's Edmonton Chapter Coordinator, Sonia Chies, has become well-versed in running DIY fundraisers and offers some insight here!

Do you have an old car taking up space on your property? Working on our behalf, Donate-a-Car Canada will accept your vehicle for donation -- running, or not! Old or new!

Donate-a-Car Canada will facilitate all aspects of your car donation from the pick up to the final sale, ensuring that your vehicle will be sold for the highest sale outcome possible. They will then forward the net proceeds on to us here at PKD Foundation of Canada and we will send you a tax receipt!

Visit to find out more about our partnership with Donate-A-Car!

The PKD Foundation of Canada chapters and the volunteers who lead them are the backbone of the polycystic kidney disease (PKD) community, driving vital programs around the world. They are made up of groups of volunteers – PKD patients, family members and friends just like you!

We are looking for volunteers for 2022! If you are interested, please email us at [email protected].

Polycystic kidney disease (PKD) is one of the world’s most common, life-threatening genetic diseases. Your stories can help people paint a more powerful picture of PKD and the lives it affects.

Help give a voice to a widely unknown disease by sharing your story here.

You can read some of our Voices of PKD here!


"The Specialist in End-of-Life Care, Neuroprognostication and Donation (SEND) program, announced on Monday, will see 22 physicians across the province coordinating organ donation and transplantation opportunities to increase donations and save more lives."

Read the full article here!

"Two firefighting friends in Winnipeg will fight a different kind of battle together as one gives the other a much-needed organ."

Read this inspiring story of generosity here!

"Hospital pharmacy technician Tori said doctors diagnosed him with ARPKD – autosomal recessive ­polycystic kidney disease, which left his kidneys covered in cysts that “resembled frog spawn."
Read the full story, here. To learn more about autosomal recessive polycystic kidney disease (ARPKD), visit our resource centre at

Cassandra Rivett of London Ontario, received the gift of life from her neighbour/coworker on June 1st. Watch the full story here!

Working for a cure, 

Your Friends at the PKD Foundation of Canada

Every gift - no matter the size - can make a difference in the fight against PKD. Please consider making a donation today.