KDIGO ADPKD Guideline | Webinar Video
This webinar was held live on March 26, 2025.
Access Resources from the Webinar
In January 2025, KDIGO - a global organization that is developing and implementing evidence-based clinical practice guidelines for kidney disease - released the first-ever guideline for the diagnosis, management and treatment of ADPKD.
Join Canadian nephrologist Dr. Matthew Lanktree, and PKD Foundation of Canada board member and patient partner Henry Osei-Agyekum, as they discuss what the ADPKD Guideline means for healthcare providers and ADPKD patients, and answer common questions about the management and treatment of ADPKD.
This webinar will give patients better insight into the best, evidence-based ways to manage and treat ADPKD, and will include a live Q&A session.
The ADPKD Guideline provides healthcare providers, people living with ADPKD, and stakeholders with practical tools to improve diagnosis, care, and treatment, and address the complex challenges of managing this widespread inherited kidney disorder.
The guideline spans topics such as disease nomenclature, diagnosis, prognosis, kidney and extrarenal manifestations, treatment strategies, and pregnancy and reproductive issues.
The guideline also includes a dedicated chapter for issues related to children.
"This comprehensive guideline reflects the significant progress in ADPKD research over the last decade, from genetic insights to advanced therapies," said Guideline Co-Chair Vicente E. Torres, MD (United States). "By addressing the complexities of diagnosis, treatment, and management, we hope this guideline will standardize care, enhance clinical practices, and help reduce the global burden of ADPKD. Our goal is that this resource will not only empower clinical decision-making but also inspire hope for patients and their families, demonstrating that meaningful progress is achievable for this challenging disease."
About the Speakers
Dr. Matthew Lanktree is a clinician-scientist, associate professor, and medical director of the McMaster Kidney Genetics Clinic, caring for patients with autosomal dominant polycystic kidney disease, chronic kidney disease, and kidney failure at St. Joseph's Healthcare Hamilton and McMaster University.
Matt trained across Ontario, starting with computer science at the University of Waterloo, medical school and a PhD in genetics at the University of Western Ontario, Internal Medicine and Nephrology training at McMaster University, and a fellowship in inherited kidney disease at the University of Toronto with Dr. York Pei. Matt also had extra training in polycystic kidney disease at the University of Chicago with Dr. Arlene Chapman. In total, he had 17 years of University training!
Matt has published over 100 articles in genetics and medicine, has received peer-reviewed funding from the Canadian Institutes of Health Research, the Canadian and American Societies of Nephrology, and was awarded the Canadian Society of Nephrology New Investigator Award.
Matt cares for hundreds of patients with ADPKD, as well as patients with many other inherited kinds of kidney disease, and has set his goal to use genetics to improve the care of patients with kidney disease.
Henry Osei-Agyekum, an ADPKD patient, is the newest member of the PKD Foundation of Canada’s Board of Directors. He has a background in biochemistry, and 15 years of experience working in the pharmaceutical sector.
Having lost his mother to complications from polycystic kidney disease, Henry has experienced the impact of the disease firsthand. With a deep personal connection to the cause, he is passionate about raising awareness, advocating for research, and supporting efforts to improve treatment options for those affected by PKD. Henry is dedicated to making a meaningful difference in the fight to end PKD.
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