To help government decision-makers understand your reality, as well as the challenges associated with PKD, you can participate in the advocacy campaign in a very concrete way. You can help end PKD by talking to the media or your local Member of the National Assembly (MNA).
This tactic consists of sharing your story with the local media to raise awareness of PKD in your community to help reach decision-makers. The media represents an excellent way to help us raise awareness of PKD.
Meetings with your local Member of National Assembly (MNA)
It is also possible to contact your MNA to share your experience with PKD and raise awareness of this disease.
If you are interested in being part of the media relations campaign or meeting your local provincial elected official, you can start by sharing your story in the Voices of PKD section and a representative of the PKD Foundation of Canada will communicate with you to discuss next steps.
We look forward to your support in the fight against PKD!