News
April 17, 2025

April 2025 Issue | PKD e-News

Spin & Support

What does 1,985 km have to do with PKD? This May, help us hit that goal in honour of the gene that started it all, discovered in 1985. Whether you're a casual rider or a cycling champ, every kilometre fuels hope for a cure. Learn more here.

Trials & Triumphs

Curious about the latest breakthroughs in PKD-related research?  From nanotechnology to wearable dialysis tech, My PKD keeps you in the loop with the newest research. Join My PKD today, and browse the live feed for regular updates.

Gift of Life

One donor can save up to 8 lives. 💚 During National Organ and Tissue Donation Awareness Week (NOTDAW), help us increase donor registrations, spark conversations, and honour those who gave the ultimate gift.

Webinar: Advocating for Life

What’s stopping more kidney transplants? Join us on April 22 for a real talk about the barriers to living donation - and what we can all do to change that. Speakers: Living kidney donor Kris Woods from the Canadian Transplant Association (CTA) and his kidney recipient, PKD patient Joanna Macleod. Register here.

Welcome Henry & Blair!

Big hearts, bold ideas! Meet Henry and Blair - two new board members who live with PKD and are working hard to help us END it.

The Soul of Our Success

Small actions make big waves. This National Volunteer Week, we’re celebrating the many amazing volunteers who bring energy, heart, and hope to the PKD community. Thank you, everyone, for your time and caring! We 💚 you! Get involved with this year’s Walk, here!

Raise, Bet, Cure.

“All in” for PKD! ♠️ On April 25, join us in Montreal for an exciting 3rd-party fundraising event - a fun night of poker, prizes, and giving back - all skill levels welcome! Learn more here.

Fairways for Hope

Swing into action for a cure! ⛳️ Join us May 29 near Hamilton for a feel-good day of golf, food, fun, and fundraising for the PKD Foundation of Canada. Learn more here, and register by April 30!

ADPKD Explained

Wondering what the new ADPKD care guideline means for you? Watch our latest webinar with Dr. Lanktree for answers you can trust and advice you can use.

Let’s Talk about Late-Stage Kidney Disease

Some conversations are hard - but necessary. Join our next Mind Matters Chat on April 29 to connect with others living with late-stage PKD. No slides, no pressure - just the support of people like you. Note that this event will not be recorded. Register here.

Urine Test 101

Ever wonder what your urine tests really mean? This month’s blog from registered dietician and certified diabetes educator Emily Campbell breaks it down so you can better understand your results - and your kidneys.

Test. Track. Tweak.

Want to feel more prepared at appointments? Download our new urine test tracker from My PKD, to stay on top of your PKD health and spot changes early. Not a member yet? Join My PKD today!

Webinar: Plant Nutrition

Want a kidney-friendly meal that actually tastes good?  Join us May 27 to learn the latest on PKD nutrition - and watch a tasty, plant-based recipe by Emily Campbell come to life! Register here.

Kidney, Diabetes, Transplant

Juggling PKD, diabetes, and transplant plans? Don’t miss this helpful webinar from the Transplant Ambassador Program, where transplant ambassadors share real advice for managing it all.

Connect. Learn. Support.

Wondering what’s happening in the PKD world? 📅 Join My PKD and find a curated list of kidney-friendly support meetings, webinars, and special events - all in one place!