Seeking out peer support - whether one-on-one or in a group setting - can offer numerous benefits for people with polycystic kidney disease (PKD). Learn how peer support can help you, and where you can find it.

Emotional Support

Regular interactions with peers who understand the challenges of living with PKD can provide significant emotional support. Sharing experiences and feelings can help reduce feelings of isolation and anxiety.

Information Sharing

Participants can exchange valuable information about managing PKD, including tips on diet, exercise, and coping strategies. Hearing about others' experiences with different treatments and medications can also be beneficial.

Access to Resources

Peer support providers and groups often share resources such as the latest research, upcoming events, and useful tools for managing PKD. This can help individuals stay informed and connected to the broader PKD community.

Empowerment and Advocacy

Receiving peer support can empower individuals to take an active role in managing their condition. It can also provide opportunities for collective advocacy efforts, raising awareness, and pushing for better treatments and research funding.

Social Connections

Building relationships with others who understand the PKD journey can lead to lasting friendships. These social connections can be a source of strength and encouragement.

Mental Health Benefits

Regularly participating in support groups or receiving peer support can improve mental health by providing a safe space to express concerns, receive validation, and reduce stress through communal support.

Shared Coping Strategies

Members can learn new coping mechanisms from each other, which can be particularly helpful in managing the chronic nature of PKD and its impact on daily life.

Motivation and Hope

Seeing others successfully manage their PKD or hearing positive stories can provide hope and motivation. It can inspire individuals to adhere to their treatment plans and make positive lifestyle changes.

Overall, peer support can play a crucial role in enhancing the quality of life for people with PKD by providing a supportive, informative, and empowering community.

Find Peer Support

Here are some places you can find peer support from people who have lived experience with PKD:

PKD Mind Matters Chats

These online monthly chats on a variety of topics that are important to people with PKD are a supportive, confidential way to find community with others affected by PKD. 

Browse upcoming PKD Mind Matters Chats here.

Kidney Foundation of Canada PKD monthly peer support meetings

The Kidney Foundation of Canada offers a monthly online PKD peer support group in partnership with the PKD Foundation of Canada.

Learn more here.

Transplant Ambassador Program (TAP) kidney donation and transplant peer support

TAP is a volunteer peer support program for kidney transplant recipients and living donors. They can match kidney recipients, caregivers and living donors at any stage in the transplant process with one-on-one peer support.

Learn more here.

Training

Are you interested in being trained to be a peer support provider to others in the PKD community? 

Contact us by emailing [email protected], and we can connect you with the free training that matches your interests.