December 19, 2022

December 2022 PKD e-News

Welcome to the PKD Foundation of Canada's December e-News! We have provided information important to helping you take action in your journey with PKD.

To view the e-News in French click here!


The PKD Summit is an opportunity for the PKD medical community, renal healthcare professionals, PKD patients, their families and loved ones to connect and hear presentations from top Canadian and International Key Opinion Leaders in the field of PKD.

THANK YOU to all those who joined us for the 2022 PKD Summit this past November! ICYMI, the PKD Summit recordings and additional resources are now available here!


At the PKD Foundation of Canada, the needs for advanced treatment options and increased support of those living with PKD and their loved ones continues to grow. Please consider keeping us in mind as you make your end-of-year donation. Your support will help strengthen our mission to provide programs of research, advocacy, education and awareness.

As the end of the year closes in, time is running out on tax deductible donations. Canadian Federal and Provincials governments offer tax incentives (amounting to as much as 53% of your donation) to Canadians who give to registered Canadians charities. For many, it’s by leveraging these tax benefits that they can give more generously to charities.

Make a Donation

Do you follow us yet on social media? If not, check out the links below and give us a 'follow!' It's another great way to stay connected with the PKDFOC and PKD related news from around the globe!

As we return to in-person educational and support meetings in the Spring of 2023, we are in need of meeting volunteers! We also have a number of Chapter Coordinator positions open in Vancouver, Edmonton, Calgary, and Ottawa.

If you are interested in getting involved, please contact us!


"People often think if PKD patients look healthy and normal on the outside, that they are not that sick. This is an important reminder that we do not know what people are going through, and how they are feeling inside."

Read Luisa's story and and share your own at

Check out the latest episode of the Living Transplant Podcast. Candice Coghlan is joined by guest host, Ioanna Roumeliotis, a kidney donor to her brother who lives with PKD. They discuss the process of donating, the ups and downs and how ordinary people can do extraordinary things, like saving a life by donating a kidney or liver. Candice and Ioanna are joined by Dr. Sunita Singh, Medical Director of the Living Kidney Donation Program at UHN. She describes the importance of donor safety, the process of becoming a living donor and how grateful she is to be part of such a remarkable journey.

Listen on Apple, Spotify, Amazon or wherever you get your podcasts. For more information, visit UHN's Living Transplant Podcast.

Working for a cure, 
Your Friends at the PKD Foundation of Canada
Every gift - no matter the size - can make a difference in the fight against PKD. Please consider making a donation today.