Topic Details
Join us to learn more about tolvaptan (brand name of Jinarc in Canada and Jynarque in the USA) in a PKD Foundation (USA) recorded webinar, hosted by Ronald Perrone, M.D., Associate Chief, Division of Nephrology at Tufts Medical Center and Professor of Medicine at Tufts University School of Medicine.
Additionally, we will begin discussions surrounding organizing a local Bike to the Moon ride during June 22-25, 2018. We will use this time to brainstorm ways to promote our ride, the various volunteer opportunities available, as well as how to maximize awareness and fundraising efforts.
We will close out the event with a round-table discussion to address any questions or concerns the group may have, while also planning the next chapter meeting and discussing interest in hosting a Paint Night fundraiser, with input from the group.
RSVP below!
Ongoing chapter activities include:
- Educational meetings
- Support groups & socials
- Increasing awareness of PKD
- Local fundraising events
PKD Foundation of Canada Chapters are led by volunteers who want to make a difference in the fight to end PKD! Contact us today to find out how you can get involved.
Ensure you are receiving all Edmonton Chapter updates by emailing us a request to add you to the Edmonton Chapter email list! You can also stay up to date by following the chapter on Facebook.