Does your family talk about PKD? Would you like to change that in a positive way? We now have resources for having conversations with your loved ones about PKD.

These are some PKD topics that can be hard to discuss: 

• Fear of Passing on the Disease
• Impact on Family Dynamics
• Financial Strain
• Worry About Disease Progression
• Decision-making Regarding Treatment Options
• Emotional Toll on Caregivers
• Concerns About Transplantation
• Impact on Daily Life
• Stress from Uncertain Prognosis
• Effect on Parent-Child Relationships
• Navigating Healthcare System
• Balancing Privacy and Support
• Impact on Mental Health
• Role Reversal
• Difficulties with Fertility
• Communication with Healthcare Providers
• Genetic Testing and Family Planning
• Impact on Career and Education
• Coping with Loss and Grief

Check out our new resource for planning a PKD conversation with your family, adapted from our new booklet, Having a Conversation with Your Adult Children about Your PKD Diagnosis.