November 30, 2020

November 2020 PKD e-News


November 2020


Welcome to the PKD Foundation of Canada's November e-News! We have provided information important to helping you take action in your journey with PKD.


Watch The Webinar Recording Now: Experience of People with ADPKD with Ketogenic Diets-Feasibility & Effects

Thank you to those who joined us on October 29th for our webinar with Dr. Strubl, "Experience of People with ADPKD with Ketogenic Diets-Feasibility & Effects."

Recently, the Weimbs laboratory (UC Santa Barbara) has published the first evidence that induction of ketosis via ketogenic diet or intermittent fasting ameliorates disease progression in animal models of PKD. Due to their common use for weight control or for other health benefits, ADPKD patients may already have experimented with ketogenic dietary interventions. This case series study was designed to gain first insights about possible effects and the feasibility of ketogenic diets for ADPKD patients.

Sebastian Strubl, a Postdoctoral Researcher at the Department of Molecular, Cellular & Developmental Biology and Neuroscience Research Institute from the University of California Santa Barbara presented his preliminary findings of his study on ADPKD and ketogenic diets, and took questions afterwards.

This webinar gave PKD patients and their loved ones the opportunity to learn about the latest PKD research as well as ask questions to Dr. Strubl.


To watch all of our past educational webinar recordings, click here!

AAKP HealthLine Webinar: COVID-19 - Kidney Patient Planning for a Safe Holiday Season

"Holiday season is upon us, and many concerns loom over traveling and congregating for events and celebrations during COVID-19. Join American Association of Kidney Patients for a educational webinar to learn what high risk, immune compromised individuals can continue to do to remain safe while being able to enjoy the holidays."

In addition to the presentation, Jeffrey Silberzweig, MD, Chief Medical Officer at The Rogosin Institute, answers top patient questions!

Watch the webinar recording here!


The Centre for Living Organ Donation at UHN: Living Transplant Podcast

The Centre for Living Organ Donation's podcast series, 'Living Transplant' is out now!

"Hosts Brittany Cole (Bedside Nurse, Ajmera Transplant Centre) and Courtney Mahrt (Communication, Centre for Living Organ Donation) as they explore transplantation through the perspectives of frontline staff, researchers, innovators, and transplant pioneers, as well as organ donation recipients, living organ donors, families and caregivers.

This podcast is available on iTunes, Spotify or wherever you listen to podcasts. New to podcasts? Head to to listen!"


In the News: Teen Finds Kidney Donor After Long Search During Pandemic

Shaden Weinberger, a teen from Waterloo Ontario that was diagnosed with acute kidney failure and Alport syndrome, has received a kidney donation following a long search.

"Weinberger was coaching his nephew's hockey team this time a year ago. A few months later, everything changed for him."

Read the full article here!

New Online Program For Those Who Need a Kidney Transplant: Having Your Donor Find YOU!

Harvey Mysel, a 2-time living kidney transplant recipient and founder of the not-for-profit Living Kidney Donors Network (LKDN), has been helping kidney patients for over a decade by giving workshops at transplant centers and dialysis clinics. This experience has provided him with a unique perspective and a deep understanding of how recipients find donors. Having Your Donor Find YOU! is a comprehensive video series with graphics that educates patients about transplant and gives them the tools to mount a successful living donor campaign. 

To learn more and view the 'Having a Donor Find You' video series, click here!

In the News: Kidney Recipient Meets the Donor Who Saved Him

"Martinez had waited two agonizing years on the transplant list. Then Kat came along.

The other transplant surgeon, Dr. James Piper, said, “Most of these donors are relatives or friends, had some kind of close, personal relationship. And just imagine somebody like Catherine coming forward and just walking into our office and saying I want to help someone I don’t even know. Take my kidney and give it to somebody I can really help. That’s above and beyond.”

Read the full article here!

In the News: The Gift of Life From a Friend

Wade Neal, a Peel Regional Police Officer who suffers from polycystic kidney disease, received a kidney donation from his colleague and friend of 30 years through the paired kidney donation program yesterday. Wade hopes that his story will resonate with those who are not familiar with organ donation and inspire interest in becoming a donor.

Watch Wade and John’s story

#GivingTuesday is Tuesday December 1st!

2020 has been a difficult year for many of us, including the charitable sector and the PKD Foundation of Canada. With event cancellations, funding shortfalls and increased need for support, now more than ever, you have the opportunity to make an even bigger impact with your support.

You can make a lasting impact in the lives of 66,000 Canadians and 12.5 millions worldwide by participating in an annual day of giving on December 1st. Learn more and help give a voice to a widely unknown disease here!

Have You Made Your Tax-Deductible Charitable Donation?

Donate by December 31st to receive a charitable tax receipt for your 2020 return! Tax incentives can be up to 53% of your charitable donation in Canada, depending on your province. Take advantage of these tax benefits by helping the PKD Foundation of Canada continue provide support and services to those affected by PKD!

Turn Your Old Car Into Support for the PKD Community! 

Do you have an old vehicle taking up space on your property? Visit to find out more about our partnership with Donate-A-Car! ⁣
Your donation will directly support the programs and services of the PKD Foundation of Canada, and will have a positive impact on the lives of those living with PKD.

Help People SEE ADPKD: Share Your Story Today!

Polycystic kidney disease (PKD) is one of the world’s most common, life-threatening genetic diseases. Your stories can help people paint a more powerful picture of PKD and the lives it affects.

Help give a voice to a widely unknown disease by sharing your story here.

You can read some of our Voices of PKD here!