The PKD Foundation of Canada is thrilled to introduce My PKD, a new private online community designed for individuals and families affected by polycystic kidney disease (PKD). We understand the importance of connection and the power of having trusted resources and information at your fingertips. Whether you’re newly diagnosed, exploring organ donation and transplant, or simply looking for a forum to share your story, My PKD will bring it all together in one safe, secure, and convenient place.
Why My PKD?
Navigating life with PKD can feel overwhelming, but you’re not alone. My PKD is being developed to help you:
- Connect with others in a secure, members-only environment.
- Access trusted resources about PKD, including treatment options, lifestyle tips, and research updates.
- Join the private forum to ask questions, find support, and share your journey.
- Stay informed about upcoming events, webinars, and meet-ups in your area or online.
Key Features
All-in-One Library of Trusted Resources
Get access to a comprehensive collection of articles and videos tailored to your PKD journey. Whether you’re newly diagnosed or looking for information on organ donation and transplant, you’ll find the knowledge you need all in one place.
Safe and Secure Forum for Real Connections
Our private, moderated forum provides a space to:
- Ask questions about PKD and get answers from people who understand.
- Share personal experiences and inspire others.
- Build meaningful relationships with those who truly understand the challenges of PKD.
Events and Meet-Ups
Never miss a chance to engage with the community. Explore a comprehensive calendar of upcoming webinars, support groups, and advocacy campaigns, whether online or in-person.
Privacy You Can Trust
Your safety and privacy are our top priorities. My PKD is a secure, members-only platform, where all new memberships are manually approved to ensure a safe experience for everyone.
Who Is This For?
My PKD is for anyone impacted by polycystic kidney disease, including:
- Patients at every stage, from newly diagnosed to post-transplant.
- Family members and caregivers seeking support.
- Living organ donors looking for resources and connection.
- Healthcare professionals dedicated to the PKD community.
Why This Matters
Living with PKD doesn’t have to be isolating. My PKD is a space where you can access the support, information, and relationships you need to face PKD with confidence. It’s a place where empathy, expertise, and empowerment come together – because no one should face PKD alone. Together, we’re building a stronger, more connected PKD community. Let’s move forward, together! Join us today!