September 2024 Issue | PKD e-News
Welcome to the September e-News from the PKD Foundation of Canada! This month we have information on our Walk to END PKD events, sustainable nutrition for PKD, Keith and Gillian's Voices of PKD story, and more!
Taking Steps To END PKD!
Walk season is upon us! Register your team, reach out to your network, and raise funds for research into better treatments, patient supports and a cure for PKD.
Sept 15 - Ottawa, ON
Sept 22 - Montreal, QC
Sept 29 - Toronto, ON
Oct 20 - PKD Picnic at the Kidney Walk, Halifax, NS
There's Still Time to Register!
Get Involved!
If you have a passion for making a difference in the lives of people affected by PKD, we'd love to have you as a volunteer!
Whether you want to help out at our events, become a community advocate, peer support provider, or join our board of directors, there's a place for you.
Volunteer With Us!
Eyes On Kilimanjaro
Eric's Kilimanjaro climb is coming up in early October!
Keep up with his progress on our Peaks for PKD blog. Learn about why he's undertaking this challenge to raise awareness and funds for PKD.
Follow along on a recent training hike, or read about how Eric stays motivated in his Kilimanjaro preparations.
Support Eric's PKD Fundraiser
Forums
Join us at our upcoming FREE virtual PKD Patient Forums in October!
Patients and their loved ones are invited to join these forums to:
- Learn about PKD from a nephrologist, including how PKD can be managed
- Have your questions answered by a nephrologist during a live Q&A period
- Hear from PKD patients about their journey with PKD
Free registration. All are welcome!
Central Canada forum
Saturday, October 5 at 2pm Central Time
Western Canada forum
Tuesday, October 8 at 7pm Pacific Time
PKD Mind Matters Chat
Our September PKD Mind Matters Chat will be on the topic of early PKD. Let's talk about common PKD questions such as:
- What does having a PKD diagnosis mean for my life?
- When should I see a nephrologist?
- How do I find a nephrologist?
- What if I don't currently have a family doctor to make a referral?
- How quickly will my disease progress?
- At what point will I need to look for a kidney donor, or prepare for dialysis?
- Is there anything I can do right now to slow my disease progression?
Tues, Sept 24 at 7pm Eastern Time
Register Here
Voices of PKD
This month's Voices of PKD story comes from a couple: Keith has PKD, and his wife Gillian is his caregiver. They each share their perspective on coping with Keith's disease, and his search for a living kidney donor.
Read Keith and Gillian's Story
Finding a Living Donor
The video recording of our August webinar on finding a living organ donor is now on our YouTube channel!
Watch the Video
Sustainable PKD Nutrition
This month's Kidney Nutrition blog is about making sustainable nutrition changes when you have PKD. And enjoy a hearty vegetable soup recipe from registered dietician and certified diabetes educator Emily Campbell!
Read the Blog
Transplant & COVID-19
The Transplant Ambassador Program (TAP) is holding a webinar on what transplant and dialysis patients should know about vaccinations and COVID-19.
Wed, Sept 25 at 6:30pm Eastern Time
Register Here
BC Renal Events
BC Renal is holding some webinars in October about nutrition for kidney health, and kidney transplant.
Learn More and Register