Event Listing

Shaping Kidney Care: Patient Partner Experiences | Roundtable Discussion

WHEN
July 22, 2025 at 1:00PM EDT - 2:00PM EDT
WHERE
This virtual event will be held via Zoom
PKD

 

Register here

Do you ever wonder how you can make a real difference – not just for yourself, but for future generations living with PKD?

You're not alone.

Many people affected by polycystic kidney disease want to speak up, give back, or help improve care for others – but they’re not sure where to start. That’s why we’re hosting a special online event:

Shaping Kidney Care: Patient Partner Experiences

Free registration | Open to all

This 1-hour webinar will feature the powerful stories of four PKD patients who’ve used their lived experience to drive real change in kidney care across Canada. You’ll hear how they became patient partners – and how you can, too.

Here’s a glimpse of what you’ll hear:

  • How one patient helped improve renal nurse orientation in Nova Scotia
  • How another brought his Indigenous perspective to national guidelines on PKD care
  • How one helped develop a pain resource in British Columbia for PKD patients
  • And how another has helped build the patient engagement program at Canada’s largest transplant centre in Toronto

Whether you’re newly diagnosed, in late-stage kidney disease, post-transplant, or a caregiver or donor – your voice matters. And this webinar will show you just how powerful it can be.

If you’ve ever wanted to help others affected by PKD, this is your moment to learn how.

Register here

CONTACT
Michelle Lynne Goodfellow · · 1-877-410-1741, Toronto: 416-410-1740