What is the prognosis for children living with ARPKD?


The prognosis for children with ARPKD has improved dramatically over the last twenty years. Approximately 70 percent of newborns diagnosed with ARPKD survive the first month of life, and more than 85 percent survive to their tenth birthday. This is largely thanks to prenatal sonogram technology, which allows for a pre-birth diagnosis of ARPKD and can prepare the healthcare team in proactively treating the child.