Donor Impact 2024
Download the 2024 Impact Report
Driven by our mission, the PKD Foundation of Canada focuses on three key pillars to make a lasting impact:
- Education and support for those affected by PKD
- Awareness and advocacy to expand understanding of PKD in the broader community, and seek improved care and access to treatments.
- Funding the most promising research into better treatments, improved disease management and, ultimately, a cure.
100+
People reached out to us by phone, email or direct message for guidance, and thanks to donor support, we were able to respond to every one of them with care.
41,600+
People looking for essential information, resources and hope for living with PKD found answers on our website.
3,400+
People accessed our PKD nutrition blogs and new cookbook, Love Your Kidneys (the first PKD-specific cookbook in Canada!) finding valuable tips to help them live healthier with PKD.
550+
People joined our education events (6 webinars, 3 virtual forums, and 7 virtual PKD Summit sessions), gaining insight, resources, and the latest research on managing PKD.
200+
Community members looked to our 11 PKD Mind Matters sessions to find a safe space to share and learn ways to manage the emotional impact of PKD
25
Places across Canada where landmarks lit up, flags flew, and proclamations were made to honour PKD Awareness Day, raising visibility and support for people affected by PKD.
4 + 1
Walk to END PKD events and the PKD Picnic at the Kidney Walk brought people together to support PKD research and patient supports, and build community.
1 new
Partnership with York United Football Club, celebrating and uplifting young PKD heroes, inspiring greater awareness about PKD.
12 + 2
Voices of PKD stories and patient videos sharing the real-life experiences of people affected by PKD, bringing strength and inspiration to our community.
2
Partnerships with the Kidney Foundation of Canada (Atlantic and Ontario Regions) to provide more support and resources for PKD patients.
1
Preliminary research report exploring how PKD patients' access to care differs across Canada, so we can advocate for more equitable healthcare.
144,500+
Accounts reached by our posts on Facebook and Instagram, spreading PKD awareness and connecting people to support and hope.
12,000+
Interactions (likes, comments, shares) on Facebook and Instagram, showing how our community rallies together on social media to share, encourage, and inspire.
1 two-year
Research grant to Dr. Marie Trudel, bringing us closer to breakthroughs for PKD and polycystic liver disease (PLD).
11
PKD-specific research projects funded to date, each one helping to unlock the path to better treatments and a cure.
The Path Forward
Enhancing Family Support Systems
We are dedicated to offering full support to families and caregivers affected by PKD. Our goals include providing specialized resources and creating safe spaces for individuals and families to connect, share their experiences, and find the support they need.
Equitable Access to Care and Treatment
We will strengthen our efforts to advocate for fair access to essential healthcare services. This includes pushing for increased funding and support for critical treatments and services.
Supporting Living Donors and PKD Patients
We will continue to promote the vital importance of organ donation and transplantation, collaborating closely with transplant services to build strong support networks for both PKD patients and donors. Through focused outreach, education, and community engagement, we aim to increase understand and acceptance of organ donation.
Supporting PKD Mental Health
We will continue to build on the feedback and insights shared by PKD patients and caregivers during out 2024 PKD Mind Matters Chats and other virtual programs, strengthening mental health resources and supports for all stages of the PKD journey.