May 16, 2022

May 2022 PKD e-News

Welcome to the PKD Foundation of Canada's May e-News! We have provided information important to helping you take action in your journey with PKD.

To view the e-News in French click here!


On Wednesday May 18th, Roxanne Papineau will be presenting on the importance of a renal-friendly diet with PKD to help maintain kidney function. She will discuss what a renal-friendly diet looks like at different stages of PKD, and how to find foods that are right for you.

NOTE: This webinar will be presented in French.

Register Today!

"In a recent study published in the American Journal of Transplantation, researchers at the University of Newcastle have shown for the first time that donor kidneys can be treated with a new type of therapy to repair damage prior to transplant."

Read the full article here!


Bike to the Moon is an annual PKD Foundation of Canada global bikeathon. Collectively, we aim to bike the distance to the moon (384,400 km) and raise funds for critical Canadian PKD research across Canada. 

To register and learn more, visit!

Do you have an old car taking up space on your property? Working on our behalf, Donate-a-Car Canada will accept your vehicle for donation -- running, or not! Old or new!

Donate-a-Car Canada will facilitate all aspects of your car donation from the pick up to the final sale, ensuring that your vehicle will be sold for the highest sale outcome possible. They will then forward the net proceeds on to us here at PKD Foundation of Canada and we will send you a tax receipt!

Visit to find out more about our partnership with Donate-A-Car!

The PKD Foundation of Canada chapters and the volunteers who lead them are the backbone of the polycystic kidney disease (PKD) community, driving vital programs around the world. They are made up of groups of volunteers – PKD patients, family members and friends just like you!

We are looking for volunteers for 2022! If you are interested, please email us at [email protected].

Polycystic kidney disease (PKD) is one of the world’s most common, life-threatening genetic diseases. Your stories can help people paint a more powerful picture of PKD and the lives it affects.

Help give a voice to a widely unknown disease by sharing your story here.

You can read some of our Voices of PKD here!


PKD Foundation of Canada's Montreal Chapter Coordinator, Luisa Miniaci-Di Leo was recently interviewed by a number of news stations this past month, to raise much needed awareness for national organ and tissue donation! Watch her City News segment here!

"I like to say, be inspired by anyone. It doesn't have to be Logan, and it doesn't have to be someone famous. It can be your grandfather or your grandmother," Toby said. "Just be inspired. Take two minutes, register, and talk to your family." 

Read more here!

PKD Warrior, Jan Clemis was included in Canada Post's story for National Organ and Tissue Donation Awareness Month, "The Ultimate Gift." Canada Post released a new stamp in April that brings awareness to need for organ and tissue donors in Canada.

Learn more about Jan, here!

"When you come across a remarkable person who has maintained their transplant for so long, you have to ask: What's your secret to maintaining good health?"

Read George's full story and kidney transplant care tips here!


“We’re calling for a working group to convene to explore responsible policy for enabling direct contact between deceased donors’ families and organ recipients.” 

Click here to read the full article!

Working for a cure, 

Your Friends at the PKD Foundation of Canada

Every gift - no matter the size - can make a difference in the fight against PKD. Please consider making a donation today.