September 23, 2022

September 2022 PKD e-News

Welcome to the PKD Foundation of Canada's September e-News! We have provided information important to helping you take action in your journey with PKD.

To view the e-News in French click here!


Register Today!

We are ecstatic to be welcoming in-person Walk to END PKD events back this Fall! The remaining in-person walks will be held in Toronto (Sept 25th) and Winnipeg (Oct 1st)! We hope you will join us in the fight to #endPKD!

Register below for your city’s Walk to END PKD or choose to take the path less traveled and register for the Virtual Walk to END PKD!

The funds raised through our Walk to END PKD campaign go towards critical Canadian research and Fellowship funding, as well as strengthening our mission to promote programs of research, education, advocacy, awareness and support for those living with PKD.

The Montreal Alouettes and Ottawa Redblacks will be facing off for the Thanksgiving Classic! In collaboration with the Alouettes, we are happy to offer discounted tickets to the PKD community. With each ticket purchase, $5 will go towards supporting the PKD Foundation of Canada Montreal Chapter!

There's still time to try your luck at bingo nights at Market Brewing Company this month! We hope to see you on Thursday Sept. 22nd & 29th from 7pm-9 pm! Bingo books are $25 for 5 rounds, and $10 from each book sale will benefit the PKD Foundation of Canada.

Polycystic kidney disease (PKD) is one of the world’s most common, life-threatening genetic diseases. Your stories can help people paint a more powerful picture of PKD and the lives it affects.

Help give a voice to a widely unknown disease by sharing your story here.

You can read some of our Voices of PKD here!


The PKD Foundation of Canada and TAP are pleased to partner together to enhance and expand kidney patient support programs nation-wide! To learn about TAP’s Ambassador Directory, and their newest online service, ‘Patients Seeking Donors, click here!

View all PKDFOC webinars here!

The PKD Summit is just around the corner! Virtual events will be held on November 16th, 17th, 23rd & 24th, from 7pm-9pm EST. These events are an opportunity for the PKD medical community, renal healthcare professionals, PKD patients, their families and loved ones to connect and hear presentations from top Canadian and International Key Opinion Leaders in the field of PKD.

Stay tuned in the coming days for more details on registration and event topics! We hope you can join us.

Having Your Donor Find YOU! is a comprehensive video series with graphics that educates patients about transplant and gives them the tools to mount a successful living donor campaign. 

To learn how to build your personal campaign, click here!

We are grateful to CityTV Montreal for joining us at the Montreal Walk to END PKD earlier this month. On site, they interviewed multiple PKD patients and medical professionals to help shine a light on the impact of living with polycystic kidney disease.

This is wonderful exposure for the Montreal PKD community! Check out the full interview here!

We are so grateful for the amount of support we received for the 2022 #PKDAwarenessDay campaign. THANK YOU to the 49 municipalities for showing their support in proclaiming Sept. 4th National Polycystic Kidney Disease Awareness Day, raising the END PKD flag and for lighting monuments across Canada. We couldn’t be more appreciative of the volunteers, chapter coordinators, councilors and mayors that made this happen. Together, we will #endPKD!

To view the list of supporting communities, visit!

"We are working through a list of live donors. I am trying desperately to add people to it daily, in order to help look for a living donor match. I have had several people do the initial testing but none have been a match for me. I must continue to be my own advocate and keep adding people to this list, in hopes that my needle in the haystack is found."

Read Kelly's story and and share your own at!

The latest Living Transplant episode is now available! Host Candice Coghlan is joined by guest host, Mary Beaucage. As a follow up to the episode Indigenous Ways of Knowing, Mary discusses her kidney transplant from her cousin, barriers to transplant and her extensive advocacy work. 

For more information, visit UHN's Living Transplant Podcast.

Working for a cure, 

Your Friends at the PKD Foundation of Canada

Every gift - no matter the size - can make a difference in the fight against PKD. Please consider making a donation today.