August 23, 2022

August 2022 PKD e-News

Welcome to the PKD Foundation of Canada's August e-News! We have provided information important to helping you take action in your journey with PKD.

To view the e-News in French click here!


Register Today!

We are ecstatic to be welcoming in-person Walk to END PKD events back this fall! In-person walks will be held in Montreal (Sept 11th), Guelph (Sept 11th), Halifax (Sept 11th), Ottawa (Sept 17th), Toronto (Sept 25th), and Winnipeg (Oct 1st)! We hope you will join us in the fight to #endPKD!

Register below for your city’s Walk to END PKD or choose to take the path less traveled and register for the Virtual Walk to END PKD!

The funds raised through our Walk to END PKD campaign go towards critical Canadian research and Fellowship funding, as well as strengthening our mission to promote programs of research, education, advocacy, awareness and support for those living with PKD.

PKD Foundation of Canada has a number of remaining virtual social hours in August! We'd like to use this time to introduce new faces and catch up with seasoned members. Chapter Coordinators from the corresponding provinces will be accompanied by PKDFOC Executive Director, Jeff Robertson. We would love to see you there!

To register for the Atlantic Provinces or BC & Territories Social Hours, visit!

The PKD Foundation of Canada chapters and the volunteers who lead them are the backbone of the polycystic kidney disease (PKD) community, driving vital programs around the world. They are made up of groups of volunteers – PKD patients, family members and friends just like you!

We are looking for volunteers for 2022! If you are interested, please email us at [email protected].

Do you have an old car taking up space on your property? Working on our behalf, Donate-a-Car Canada will accept your vehicle for donation -- running, or not! Old or new!

Donate-a-Car Canada will facilitate all aspects of your car donation from the pick up to the final sale, ensuring that your vehicle will be sold for the highest sale outcome possible. They will then forward the net proceeds on to us here at PKD Foundation of Canada and we will send you a tax receipt!

Visit to find out more about our partnership with Donate-A-Car!

Polycystic kidney disease (PKD) is one of the world’s most common, life-threatening genetic diseases. Your stories can help people paint a more powerful picture of PKD and the lives it affects.

Help give a voice to a widely unknown disease by sharing your story here.

You can read some of our Voices of PKD here!


The PKD Foundation of Canada and TAP are pleased to partner together to enhance and expand kidney patient support programs nation-wide! On August 31st at 7pm EDT, we hope you can join us to learn about TAP’s Ambassador Directory, and their newest online service, ‘Patients Seeking Donors.

We will be joined by Susan Mckenzie, Co-founder and Chair of Transplant Ambassador Program, as well as Claudia Morgan & Paul Teolis, both PKD patients who will be sharing their transplant and TAP Ambassador experiences.

We hope to see you there! Friends and family are always welcome!

Register Today!

Cool down this summer with this delicious, PKD-friendly, strawberry rhubarb lemonade recipe!


Though PKD affects thousands in Canada and millions worldwide, many people have never heard of it. Together, we can change this! #PKDAwarenessDay (September 4th) is our day to raise awareness about this disease and the devastating impact it has on generation after generation.

Learn more about how to get involved this PKD Awareness Day here!

While I hate that so many of us will be challenged by this, I find comfort in knowing we're in this together."
Read Ciara's story and and share your own at!

Katie Banks decided to get tested for polycystic kidney disease (PKD) at 35 years old, following the passing of her mother who also had PKD. Now awaiting a kidney transplant, Katie strives to raise awareness for this life-threatening, genetic disease. Read more here.

The latest Living Transplant episode, "Yes, You Can Have a Family," features host Candice Coghlan and guest host, Kate Chong, who received a kidney transplant from her husband. Candice and Kate discuss their journeys in family planning, being pregnant, and the joys of motherhood while living with chronic kidney disease. For more information, visit UHN's Living Transplant Podcast.

Working for a cure, 

Your Friends at the PKD Foundation of Canada

Every gift - no matter the size - can make a difference in the fight against PKD. Please consider making a donation today.