July 19, 2022

July 2022 PKD e-News

Welcome to the PKD Foundation of Canada's July e-News! We have provided information important to helping you take action in your journey with PKD.

To view the e-News in French click here!


Register Today!

We are ecstatic to be welcoming in-person Walk to END PKD events back this fall! In-person walks will be held in Montreal (Sept 11th), Guelph (Sept 11th), Halifax (Sept 11th), Ottawa (Sept 17th), Toronto (Sept 25th), and Winnipeg (Oct 1st)! We hope you will join us in the fight to #endPKD!

Register below for your city’s Walk to END PKD or choose to take the path less traveled and register for the Virtual Walk to END PKD!

The funds raised through our Walk to END PKD campaign go towards critical Canadian research and Fellowship funding, as well as strengthening our mission to promote programs of research, education, advocacy, awareness and support for those living with PKD.

While June 30th officially marked the last day of the campaign, Bike to the Moon fundraising pages will remain open for the month of July as those last minute donations trickle in! This gives you a little more time to re-connect with potential sponsors directly.

THANK YOU to all those who participated, donated, and supported Bike to the Moon! We couldn't have done it without your hard work and dedication! Your support will strengthen our programs of research, education, awareness, support and advocacy. Together, we will END PKD!

PKD Foundation of Canada has a number of upcoming virtual social hours in July and August! We'd like to use this time to introduce new faces and catch up with seasoned members. Chapter Coordinators from the corresponding provinces will be accompanied by PKDFOC Executive Director, Jeff Robertson. We would love to see you there!

To learn more and to register for a social hour near you, visit!

The PKD Foundation of Canada chapters and the volunteers who lead them are the backbone of the polycystic kidney disease (PKD) community, driving vital programs around the world. They are made up of groups of volunteers – PKD patients, family members and friends just like you!

We are looking for volunteers for 2022! If you are interested, please email us at [email protected].

Do you have an old car taking up space on your property? Working on our behalf, Donate-a-Car Canada will accept your vehicle for donation -- running, or not! Old or new!

Donate-a-Car Canada will facilitate all aspects of your car donation from the pick up to the final sale, ensuring that your vehicle will be sold for the highest sale outcome possible. They will then forward the net proceeds on to us here at PKD Foundation of Canada and we will send you a tax receipt!

Visit to find out more about our partnership with Donate-A-Car!

Polycystic kidney disease (PKD) is one of the world’s most common, life-threatening genetic diseases. Your stories can help people paint a more powerful picture of PKD and the lives it affects.

Help give a voice to a widely unknown disease by sharing your story here.

You can read some of our Voices of PKD here!


All of our latest webinars including, "Clarity on Keto for PKD: Is it right for you?" and "Why Does ADPKD Severity Differ Among Family Members?" are available online now! Visit today!


A big THANK YOU to all those who volunteered and came out to support us at the Grand Prix Festival on Crescent Street in Montreal! It was an incredible weekend of raising critical awareness of polycystic kidney disease (PKD)!

A special shout-out to Montreal Chapter Coordinator, Luisa Miniaci-Di Leo and her entire family for their tireless efforts promoting this event!

"Even though I dislike writing, I would like to share these results to give hope to other people with polycystic kidney disease (PKD). About 15 years ago, I had a scan because of acute appendicitis."

Read Mario's full story at!

CBC’s Ioanna Roumeliotis tells her family’s story of what it’s like to give and to receive a life-saving organ. To watch the full story, click

Working for a cure, 

Your Friends at the PKD Foundation of Canada

Every gift - no matter the size - can make a difference in the fight against PKD. Please consider making a donation today.