October 2025 Issue | PKD e-News
Welcome to the October e-News from the PKD Foundation of Canada! This month we have information on the 2025 Walk to END PKD season, this year's PKD Summit registration, food safety for the immunocompromised, and more!
You Did It!
We have surpassed our 2025 goal for the Walk to END PKD, with more than $170,000 raised for PKD research and patient supports.
Way to go! Thanks to everyone involved who volunteered, registered, donated and walked.
Halifax, we'll see you this weekend!
Will You Be Our Winner?
Our Nova Scotia 50/50 Renal Raffle will be drawn tomorrow - so if you're a Bluenoser, don't miss your chance to win!
Sales close at 12:30pm on Saturday, October 18, and the draw is one hour later.
All About Jinarc/Tolvaptan
Do you have questions about Jinarc (tolvaptan)?
Fri 24 Oct 2025 @ 11:00am AT
Join us next week for a special virtual forum for people affected by ADPKD.
Dr. Avinash Rao Ullur (nephrologist) and ADPKD patient Erika Williams will explain how tolvaptan works, who it's recommended for, and what patients need to consider when starting this treatment.
Look at This Lineup!
Our 2025 PKD Summit is now open for registration. Choose from these individual topics:
- Nutrition that fits your life
- Family planning with PKD
- Living with the unknown (mental health and PKD)
- Foam sclerotherapy for PKD and PLD
- Exercise for PKD
- Wellness before transplant
- Pregnancy with PKD
- Emergency preparedness for PKD
There are topics for every stage of PKD - please share with family members and friends who might be interested in one or more of these!
Ces événements se dérouleront en anglais.
Et en français...
We try to have a few learning events in French every year for our francophone community.
We're pleased to share that we've lined up the following webinars in French at the end of this year.
- Medications and PKD (includes a discussion about tolvaptan)
- Nutrition that fits your life
- All about the 2025 KDIGO ADPKD guideline
Watch your inbox for upcoming registration details!
Ces événements se dérouleront en français.
Avoid Food "Uh-ohs"
Food safety is important for everyone, but especially those in late-stage PKD, or post-transplant.
Learn how to avoid food contamination with bacteria and viruses, to stay well when immunocompromised.
Ever wondered what it's really like to avoid infections after transplant? We're talking about it on My PKD, here.
Not a member yet? Join today.
Where Others "Get It"
Join us for our October PKD Mind Matters peer support meeting, where we talk about late-stage PKD.
We're a friendly bunch, and we "get it". Come as you are, and feel at home.
Cet événement se déroulera en anglais.
More Than Kidneys
The video from our recent webinar with Dr. Gavril Hercz, nephrologist and psychoanalyst, is now on our YouTube channel.
Healthcare for kidney disease needs to address more than kidneys - your mental health matters, too.
Cet événement s’est déroulé en anglais.
Hope Grows Here
The Kidney Foundation of Canada offers a number of monthly peer support groups, including one dedicated to PKD.
Find your tribe!
Ces événements se dérouleront en anglais.
PKD Community - Real Time
Can't wait for a peer support meeting to connect with someone about what's on your mind?
Join one of the conversations happening now on My PKD - or start your own!
- Ask a question about genetic testing and screening
- Immunosuppression post-transplant
- Share your PKD "origin story"
Many of these discussions are in English, but if you post in French in our forum, we’ll reply in French to you.
Kidney in a Bag?
Find regular PKD research news on My PKD, including:
- Using "kidney in a bag" to advance kidney research
- Repairing mutations in ADPKD
- Long-term benefit of tolvaptan
Curated for You
Enjoy the convenience of finding PKD-related learning and support events on My PKD!