Hello friends, good news to share: a kidney donor has been found!I’ve been holding off talking about this for a few months now. The disease makes me exhausted, and for some reason the prospect of writing this note felt too much to tackle. I also want to be very careful...
February 29th, 2020 is Rare Disease Day! Show your support by learning about actions you can take in order to raise awareness.
Willie Van Dyk "When I was around the age of 35 (1996) I was diagnosed with polycystic kidney disease. PKD is an inherited disorder where clusters of cysts to develop within your kidneys, causing your kidneys to enlarge and lose function over time." Nettie Van Dyk "When my husband, Willie,...
Welcome to the PKD Foundation of Canada's February e-News! We have provided information important to helping you take action in your journey with PKD.
Ahead of World Kidney Day on March 12th 2020, Montreal Chapter Coordinator, Luisa Miniaci-Di Leo has been invited by Dr. Bollée to talk about PKD live on Facebook from his office at IRCM (Institut de Recherches Cliniques de Montréal) on March 11 at 2pm.
As part of the patient advocacy groups in Montreal, Luisa Miniaci-Di Leo was invited to participate in the “Rare Disease Research Day” at the McGill University Health Centre.
"The Montreal Chapter is physically located in Dollard-Des-Ormeaux and started its 2020 awareness campaign early with a visit to DDO federal MP Sameer Zuberi and provincial national assembly representative Carlos J Leitao. Also participating in both meetings were several PKD patients from the Greater Montreal Area."
Welcome to the PKD Foundation of Canada's January e-News! We have provided information important to helping you take action in your journey with PKD.
My name is Luisa Miniaci-Di Leo. Last October I turned 63, and each sunrise makes me feel bittersweet because I have already outlived my grandmother. I’m a resident of Dollard Des Ormeaux, and Montreal Chapter and Walk Coordinator for the PKD Foundation of Canada. Here’s why I took on the role as...
Welcome to the PKD Foundation of Canada's December e-News! We have provided information important to helping you take action in your journey with PKD.