"I was diagnosed with PKD in 2003 at the age of 33. My diagnosis was a shock, as I didn’t know of any family members being affected. I reached out to my father’s family in BC, whom we had never met, and discovered that my cousin had been diagnosed around the same...
Submitted by Chiara Gamberi, Ph. D. Affiliate Assistant Professor, Department of Biology, Concordia University
Check out the PKD Foundation of Canada's December e-News! We have provided information important to helping you take action in your journey with PKD.
Season's greetings to you and yours from the PKD Foundation of Canada!
Check out the PKD Foundation of Canada's November e-News! We have provided information important to helping you take action in your journey with PKD.
"I am 49 years old, and I was diagnosed with PKD after our youngest of 3 children was born. I had never heard of PKD before my diagnosis. My parents don’t have, it so I mutated the gene. When our girls got older, we had them tested by ultrasounds, and...
Meet Jarrett, whose son was born with polycystic kidney disease. Since attending the Canadian PKD Symposium in Toronto in 2015, Jarrett has become one of our board members and part of our community.
The REPRISE study was conducted in late-stage ADPKD patients with chronic kidney disease as part of the tolvaptan clinical development program. It enrolled over 1,300 patients from 213 centres across 21 countries, including 6 centres in Canada.
We are pleased to share some encouraging news regarding the treatment landscape for those living with ADPKD. Today, Otsuka announced results from their Phase 3 REPRISE trial of tolvaptan in patients with autosomal dominant polycystic kidney disease (ADPKD). This data was presented at the American Society of Nephrology (ASN) Conference...
"My name is Theresa Gray-Gunn. In 1968, my Dad passed away from a brain aneurysm. My Mom was brave enough to donate his body to science for research, and that is when they discovered that his aneurysm was caused by PKD."