Rare Disease Day 2020: We Are the 300 Million!

February 29th, 2020 is Rare Disease Day! Show your support by learning about actions you can take in order to raise awareness.

Facebook Live: Interview with Dr. Bollée (Nephrologist and Director of the Kidney Rare Disease Clinic at the IRCM) on March 11th at 2pm

Ahead of World Kidney Day on March 12th 2020, Montreal Chapter Coordinator, Luisa Miniaci-Di Leo has been invited by Dr. Bollée to talk about PKD live on Facebook from his office at IRCM (Institut de Recherches Cliniques de Montréal) on March 11 at 2pm.

Rare Disease Research Day 2020 at the Research Institute of the McGill University Health Centre

As part of the patient advocacy groups in Montreal, Luisa Miniaci-Di Leo was invited to participate in the “Rare Disease Research Day” at the McGill University Health Centre.  

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